A resolution to designate February 28, 2026, as “Rare Disease Day” has passed the U.S. Senate with unanimous support. The initiative was led by Senators John Barrasso (R-Wyo.) and Richard Blumenthal (D-Conn.), aiming to increase awareness and support for more than 30 million Americans affected by rare diseases.
The resolution acknowledges that children represent a significant share of those living with rare diseases. It also emphasizes the importance of national and international research focused on developing new treatments, diagnostics, and potential cures.
Senator Barrasso stated, “Rare Disease Day recognizes our commitment to patients living with rare diseases. It also supports the need to expand access to life-saving treatments and invest in future cures. For folks living with a rare condition, it can often leave them feeling lonely and overwhelmed. Since my time as a doctor, it has been a priority of mine to help these patients find the treatment and support they need. I am proud to join this bipartisan effort to recognize and support all Americans living with rare diseases.”
Senator Blumenthal added, “This resolution honors the many Americans bravely battling rare diseases and reaffirms our commitment to improving their quality of life. I’m incredibly inspired by the strength and resilience of the individuals fighting rare diseases, and I look forward to continuing to promote innovative research and treatment and to improve access to life-saving care.”
The resolution received additional backing from Senators Roger Marshall (R-Kans.), Amy Klobuchar (D-Minn.), Tim Scott (R-S.C.), and Cory Booker (D-N.J.).
The full text of the resolution is available here.
